Our unborn child has been diagnosed with a very serious case of hydrops fetalis – a disorder where there is an abnormal accumulation of fluid below the baby’s skin, inside the abdomen, or other areas. Further, there is an incidence of cystic hygroma as well. What this means is that there is a extremely great chance the baby will not live to term, and if he or she does (we haven’t been able to find out as yet), there is a rather high chance that the baby will have long-term disabilities of some sort. This accumulation is not localized, but encompasses the baby’s entire body. These, as I understand, are symptomatic of an underlying genetic or developmental disorder or disease. We are working on obtaining a more targeted and detailed diagnosis in the very near future.
We have a plan in place with our regular OB (a righteous, loving, and spectacularly winsome man of God we have known for a decade, and whom we thank God for – Dr. Chuck Robinson), have been in consultation with a specialist, we are having regular weekly checkups. We’re looking for an amniocentesis appointment soonest. As of today, the baby’s heartbeat is strong. We’re 19-20 weeks right now, and we’re hoping and praying that the Lord is gracious, and allows our little to live long enough to be viable and treatable; it’s still too early for most treatments, and our prayer is that God will strengthen our little one, and mitigate (or heal – we believe that God is still in the healing business, and pray that God’s will be done) the horrific disease causing these symptoms.
Please pray for us, and for our physicians, that we may both be given wisdom; that the Lord would strengthen our baby, Bethany, and myself as we prepare to fight for our baby’s life. The Fall sometimes has heartbreaking results in the lives of even little ones; but we still serve and trust a Sovereign God, who will bring His glory and the good of His people out of the midst of this trial. We trust, love and glorify our God because of this, and crave your intercession before the throne of grace. Whatever the outcome may be, Soli Deo Gloria. May His name be praised; and may He use this for His own glory, and His people’s good.
~Joshua & Bethany